Patient Stories Hub

Patient Stories

Patients often become experts on their own medical condition – find out how these community members manage their healthcare, and learn from the experts. Everyone with a bladder or bowel control problem will have a different story to tell and we are proud to be able to share so many of these with you.

These bladder and bowel patient stories can offer hope, inspiration and practical guidance to others in a similar situation.  Being able to identify with someone and make a connection can be the first step towards an eventual recovery – each story could help change someone’s life.

Please contact us to find out how you can share your story and how this could help raise awareness.

By working together we can help people understand more about these problems, the challenges faced and how and where to access health professional support.

Read some of our recent stories below.

There’s light after stoma surgery

When Rocco Mann, 20 from Banbury in Oxfordshire was first diagnosed with Crohn’s Disease, his biggest fear was ending up with a stoma bag. What he thought was his worst fears coming true, Rocco learned to embrace having an ileostomy and…

My videos help others with Interstitial Cystitis 

Jordan Bew, 36 from Cornwall spent nearly 2 years suffering from crippling, painful bladder symptoms before being diagnosed with a little known condition called Interstitial Cystitis in October 2022. Jordan shares his story about getting…

Marcus – Living with Bladder Incontinence

Marcus, from Kent was diagnosed with bladder incontinence around four years ago, however he says that he has experienced bladder symptoms for as long as he can remember and these have gradually worsened over time. Here, Marcus bravely

Pilates has helped me through Menopause

'Invincible Claire' was diagnosed with premature ovarian insufficiency and thyroid disease, after trying to start a family later in life. She now uses Pilates to manage symptoms of menopause and help others. Read her story.

Endometriosis – The Destructive Disease

Anna Cooper, 29 was diagnosed with endometriosis at the age of 17. She spent her teens suffering with heavy, erratic periods and severe abdominal pain. After 15 surgeries and her 16th planned to treat stage 4 endometriosis, Anna uses her…

Primary Ovarian Insufficiency (POI)

When Sheree Hargreaves aged 15 realised that all her friends had started their periods, she felt left behind. She decided to visit her GP to see if there was anything wrong. Nothing could prepare her to be told that she had already gone…

Speaking out helps me deal with IBS

Over 1 in 10 people in the UK are thought to have Irritable Bowel Syndrome (IBS) in the UK. It’s not really known what causes IBS but there are certain triggers such as emotional stress, sensitivities to certain food, a gut infection such…

My Stoma gave me Freedom

Amy Davidson tells her incredible story of how she grew up with Hirschsprung's Disease and never let it stop her from living the life she'd always wanted. Despite the many challenges including ileostomy surgery, she has gained the ability…

Fitness gave me confidence after stoma surgery

After years of suffering uncontrolled Ulcerative Colitis, Dan Callaghan underwent stoma surgery in the hope of getting his health back on track. Exercise and fitness had always been a big part of Dan’s life and this wasn’t something he…