Help & Information Category

Help & Information

If you’re affected by a bladder or bowel condition or would like to find out more about what we offer, we’re here to make sure you get the help and information you need.

The Bladder & Bowel Community provide over 60 downloadable resources, such as frequency charts, the Bristol Stool Chart, bladder and bowel diaries, and pelvic floor exercises, to name but a few.

You’ll also find a section on how best to support yourself on topics such as travel, sexual relationships, and emotions, and accessing a Just Can’t Wait Card to help you when you’re out and about. There is also a document specifically for those supporting their loved ones, along with a number of stories from patients and carers who have been in similar situations to your own and found the Bladder and Bowel Community a valuable resource.

If you’d like to find out more on the Bladder and Bowel Community, you can do so by browsing the About Us section. Here, you can get to know the team and how we plan on consistently improving our services.

We aim to enable people to live their lives as they wish. With these resources, we hope you or your loved one can take another step in their journey to a higher quality of life.

Endometriosis is more than just a Bad Period

What is endometriosis, and what are the symptoms caused? We share three community stories from women who have experienced the condition first hand, and learn why it can take up to 8 years to be diagnosed.

Dysautonomia and my Catheter

During February we organised a catheter awareness week on our social media channels to raise conversation around conditions such as Fowler’s Syndrome, Sacral Agenesis, Urinary Retention, Bowel Cancer and Dysautonomia, all of which can lead…

Community Survey

We strive to continually improve our services to benefit our community and your feedback is vital in this process. From time to time we'll ask for your opinions to help guide this process, to ensure we're best serving your needs.

Abbie’s Intermittent Catheter Story

Abbie Stapleton, 25 from St Neots tells Bladder and Bowel Community how endometriosis and Fowler's Syndrome led to extreme bladder pain and bladder retention, resulting in her intermittent catheters.

Urinary Retention and Fowler’s Syndrome

Zoe, 24 from Oxfordshire/Northamptonshire border tells Bladder and Bowel Community how one day she just went into urinary retention and how having a diagnosis of Fowler's Syndrome changed her life.

Natalie’s Bowel Cancer Story

Natalie, 39 from London was diagnosed with Stage 4 bowel cancer at the age of 36. The cancer had grown extensively and even after intense chemotherapy and radiotherapy treatments, she ended up undergoing Pelvic Exenteration surgery, which…

Spotlight on Fowler’s Syndrome

Today’s spotlight is on Fowler’s Syndrome, a little known bladder disorder that affects women and causes urinary retention and extremely painful bladder symptoms. Here, Megan Entwistle, 25 from Rotherham, South Yorkshire tells her story…

Being Diagnosed with Coeliac Disease Changed my Life

Coeliac Disease is a little known condition where the body’s immune system attacks the tissues when gluten is consumed. For Stella, diagnosis was positively life-changing - it meant she no longer had to live each day with stomach problems.

FAQs – Just Can’t Wait Card

Need support or troubleshooting around the Just Can't Wait Card? This article covers our most frequently asked questions, along with solutions and advice to help you make the most of the digital version of the card.

The Crippling Pain of Endometriosis

Dionne, 23 from Scotland talks to Bladder and Bowel Community about how the perception of endometriosis needs to change and more awareness is needed around just how damaging this gynaecological condition can be.