Find out about third party research studies that you can get involved in. The more information that healthcare researchers can gather about how individuals experience certain conditions and treatments, the more effective their work can be to treat, cure, and prevent diseases.
This page is regularly updated so do check back for news and additions, as we take care to follow up and share findings, wherever possible.
Current studies on this page:
NEW – Experience of chronic bladder pain
Experience of chronic bladder pain: a large-scale qualitative study
Research approved by UCL Ethics Committee (ID number: 2182/002)
Who are we?
We invite you to take part in a study of chronic bladder pain. The research is being carried out at University College London (UCL), supervised by Professor Amanda Williams, and is part of a larger project funded by UK Research Councils and Versus Arthritis that aims to improve our understanding of chronic pain in visceral diseases.
Who are we looking for?
We hope to interview people with bladder pain about their personal experience of pain. All interviews will take place online, using Microsoft Teams, at a time convenient to you, and everything you say will be treated as confidential. You will not need to travel. The interview takes up to an hour.
We need people who have had bladder pain every day for at least 3 months; who are 18 or older, can speak and read English, and do not have any significant cognitive impairment. You do not have to have had a diagnosis, or to be having treatment: we are most interested in how you feel.
If you know someone who might be interested in participating, such as a friend, colleague or family member with bladder pain, please feel free to pass on this information to them.
How to find out more:
To participate, or find out more information, please visit:
https://qualtrics.ucl.ac.uk/jfe/form/SV_8nTqzdTaEOWlORM
or
contact researcher Afra Azadi at [email protected].
Thank you for taking the time to read this advertisement.
Sacral Nerve Stimulation (SNM) Study
Shape the future of women’s health technology.
- Have you had a rechargeable Sacral Nerve Stimulation (SNM) implant to treat urinary incontinence?
- Do you use a controller or an app to manage it?
Amber Therapeutics are looking for women in the UK to take part in a friendly, in-person focus group to share your experiences with your current device controller — the good, the bad, and everything in between.
We want to hear how you feel about:
- How it fits into your daily life
- What would you change to make it more intuitive, stylish, or discreet
- Using the controller to control the implant
- (Re)charging the implant
- Setting it up and making changes
You’ll join a small group of women over great coffee and pastries in a comfortable, private London venue.
As a thank-you, you’ll receive a £100 gift voucher for your time (and all travel costs).
Where: Regus, Woburn Place – Euston, London, WC1H 0AF
When: 12pm, Friday, June 27th
Who: Women aged using an implanted device to manage incontinence
All feedback will be kept confidential, and no personal data will be collected. This is not a sales pitch – it’s a real opportunity to shape the next generation of women’s technology design.
Interested? Email us at [email protected] to learn more and check your eligibility.
Not available this time, but want to join a future session? Let us know — we’d love to keep in touch.
APPRAISE Study
Have you had surgery for prolapse, stress urinary incontinence or mesh complications?
Could you help us with our research to improve patient experiences? Please follow the link below for more information and take part:
https://leedsbeckettpsych.eu.qualtrics.com/jfe/form/SV_6umU3N3vkfFFpBQ
Anyone cake part who:
- Has had surgery for pelvic organ prolapse, stress urinary incontinence, or mesh complications
- Had their last surgery between 6 months and 14 years ago, and
- Is aged 16 years or older.
The study has been reviewed and approved by the National Institute for Health Research, who are funding the work, and by Leicester South Research Ethics Committee (ref: 24/EM/0007)
If you would like more information about this study, please contact Cat Brooke the Research Officer who will be happy to answer your questions.
Email: [email protected]
Call: 0113 812 4334
Visceral Pain Study
The University of Cambridge are involved in a study aimed at better understanding visceral pain through the experiences of people living with their condition. This will help the NHS to develop services and offer patients more effective interventions and support to address the diverse nature of their symptoms and help improve their quality of life. The study will also include how the nerves connecting inner organs to the brain cause pain, as their exact identity is unknown.
The goal is also to set up a UK-wide database of visceral pain patients to address these areas.
This survey is the first part of the project and is working with a wide number of charity partners to reach a large and diverse number of participants throughout the United Kingdom, all of whom will have differing experiences of visceral pain.
It is conducted with a larger consortium called ADVANTAGE (Advanced Discovery of Visceral Analgesics via Neuroimmune Targets and the Genetics of Extreme human phenotype) This is part of the Advanced Pain Discovery Platform (APDP)
This study has been extended and will now run until June 2026. For more information, please email: [email protected].
Please note, these studies are conducted by third party institutions – we have taken every care to ensure best practice however advise that you take care whenever sharing personal information – if you need further information please contact the research coordinator directly.
