Research and Healthcare Studies
Find out about third party research studies that you can get involved in. The more information that healthcare researchers can gather about how individuals experience certain conditions and treatments, the more effective their work can be to treat, cure, and prevent diseases.
This page is regularly updated so do check back for news and additions, as we take care to follow up and share findings, wherever possible.
Current studies on this page:
Parent with Cancer – Study for Young People
Have you been diagnosed with cancer, and are you a parent to a young person? We want to hear from them!
Research suggests that having a parent with cancer can result in feelings of loneliness for young people. I am a PhD student at Queen’s University Belfast, and I am interested in understanding more about how loneliness is experienced by these young people. This research is needed to ensure young people are best supported by services when their parent has cancer. This study has been approved by the Faculty Research Ethics Committee at Queen’s University Belfast.
Can my child take part?
- They are aged 10-19
- They have experienced loneliness and a parent having cancer.
- Your cancer was/is treated with curative intent. Curative intent aims to get rid of cancer.
- You live in the UK.
What does the study involve?
- The young person would take part in an interview on Microsoft Teams about loneliness and a mum/dad having cancer.
- They can also optionally provide three photographs they feel represent or symbolise loneliness or just take part in the interview instead.
- The young person will be thanked for taking part with a £20 Amazon Voucher.
How can I take part? Email [email protected]
Get Involved to Improve Men’s Urological Care
Paid Patient & Public Involvement (PPI) Group Opportunity
As part of the OPTIMISE Project and in collaboration with the NHS, the University of Winchester is running a study exploring men’s experiences and treatment decision making in relation to Benign Prostatic Hyperplasia (BPH), and Lower Urinary Tract Symptoms (LUTS).
Our goal is to create a Patient & Public Involvement (PPI) group to help us inform and
develop this research, to ultimately improve urological care for men.
Who can take part?
We would like to involve men between the ages of 45-85 years who have experienced
urinary symptoms and/or treatment for BPH/LUTS, as well as their partners or family
members.
You do not need to have any research experience; we are interested in YOUR experiences and perspectives!
What would taking part look like?
You may be asked to take part in focus groups/one-to-one conversations or read and
respond to research materials.
PPI members will be given a nominal payment for their support of the research
(approximately £25 voucher per hour).
If you are interested or have any questions, then please click the link below:
https://winchesterpsychology.qualtrics.com/jfe/form/SV_6J2Ov99yYEUQTau
Or email our team, on;
- Charlotte Hollands [email protected]
![Bladder and Bowel Community Twitter]()
@Charlotte_Hol_ - Dr Margaret Husted [email protected]
- Dr Debra Gray [email protected]
Visceral Pain Study
The University of Cambridge are involved in a study aimed at better understanding visceral pain through the experiences of people living with their condition. This will help the NHS to develop services and offer patients more effective interventions and support to address the diverse nature of their symptoms and help improve their quality of life. The study will also include how the nerves connecting inner organs to the brain cause pain, as their exact identity is unknown.
The goal is also to set up a UK-wide database of visceral pain patients to address these areas.
This survey is the first part of the project and is working with a wide number of charity partners to reach a large and diverse number of participants throughout the United Kingdom, all of whom will have differing experiences of visceral pain.
It is conducted with a larger consortium called ADVANTAGE (Advanced Discovery of Visceral Analgesics via Neuroimmune Targets and the Genetics of Extreme human phenotype) This is part of the Advanced Pain Discovery Platform (APDP)
The closing date for this study is 31st May 2025. For more information, please email: [email protected].
Please note, these studies are conducted by third party institutions – we have taken every care to ensure best practice however advise that you take care whenever sharing personal information – if you need further information please contact the research coordinator directly.